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Living with JHS

Sharing my story to support others and raise awareness

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Spoonie

Spoonie; what does it mean?

You may have heard, seen or read the word "spoonie" come up before and, no doubt, wondered what on earth it means! I know I talk about spoonies and how many "spoons" I've got left etc. It's something that I have talked about... Continue Reading →

Living with an Invisible Illness

There are many types of invisible illnesses, and we can all research the different variations, the definitions, the symptoms, the relief remedies (if any). But can we research what it's like living with an invisible illness? Can we research what... Continue Reading →

Winter’s coming.

I have to admit, we've done well with the weather this year. October was pretty warm compared to usual and it didn't get that cold, in my opinion. This week, however, I got a bit of a shock to the... Continue Reading →

Hurtful words

Not my usual kind of post, nor is it the one I planned out. However, that being said, we've all, at one time or another, been affected by words that we shouldn't have to hear. Ones that come with the... Continue Reading →

Travelling…

I'm currently writing this on the train so I won't promise how well my spelling will be, although I am in the spacious first class carriage so I'm not complaining too much at all. My free cuppa and soft drink,... Continue Reading →

Some much needed relaxing…

After a couple of tough months, especially the past 3 or so weeks, I'm off to London tomorrow for a lovely, long weekend. Anyone who's close to me will know that, for the past few weeks, I've had a big,... Continue Reading →

Pills, glorious pills…

  Any of you who have seen the musical "Oliver!" will know that today's post title is a play on words of "food, glorious food". Fortunately for me though,  my tablets are not hot sausage and mustard (I don't like mustard). Despite... Continue Reading →

Physio…

I saw these photos posted on HMSA's facebook page for HMS awareness week, which was last week, and realised how uncanny they related to me. Just as I can imagine a lot of you do, I always hated going to physio so... Continue Reading →

Spoonie, or spoonie?

Confused yet? I probably would be too. Some of you may already know, especially if you suffer from a condition like JHS, what a spoonie is - that it refers to someone who has an invisible, chronic illness. Like me. Like... Continue Reading →

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