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Living with JHS

Sharing my story to support others and raise awareness

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Chronic Illness at University

Now this isn't the post I originally planned for today... I was originally going to be sharing my story. However, after a tough week last week I decided to share this instead: living with a chronic illness at university. I feel... Continue Reading →

Rare Disease Day 2017

Well we've come to the end of February again. I can't believe how quick it seems to have come around... it only seemed like Christmas 5 minutes ago. With the end of February comes Rare Disease Day and every year... Continue Reading →

Spoonie; what does it mean?

You may have heard, seen or read the word "spoonie" come up before and, no doubt, wondered what on earth it means! I know I talk about spoonies and how many "spoons" I've got left etc. It's something that I have talked about... Continue Reading →

My Top 10 Tips on Loving Yourself

My guest piece on the lovely Dr Arlene’s blog, BitterSweet: Real Talk. Thank you again!❤️

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BitterSweet: Real Talk

Guest Author: Abbie Chandler

Earlier this week, we celebrated Valentine’s Day. I say celebrated but, let’s face it, some of us were probably pretending like it didn’t exist and tried to ignore the hundreds of couples out and about. All too often, we share love with others; whether it be a partner, family or even friends, but what about yourself? Do you show yourself any love?

It’s very common for us to forget to love ourselves but it’s something that we should not dismiss. It’s important to love yourself; for who you are, what you’ve achieved and what you’ve yet to achieve, regardless of how small they are.

A big part of loving yourself is self-care, especially for those of us who live with any sort of condition or illness. People don’t realise the impact that these conditions can have on, not only ourselves, but the people around us. It…

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My little zebra bracelet…

Well, this time last week, I was opening my little package and inside was this little fella! My zebra bracelet. You're probably wondering what's so special about it, right? It's just a little zebra jewel on a braided bracelet, right?... Continue Reading →

What is JHS? (part 2)

JHS then... what is it? You now know what hypermobility is, but now it's time to take it one step further. Where to start? Hmm.. Well JHS is one type of HDCT, that is, a hereditary disorder of the connective... Continue Reading →

So, what is JHS? (part 1)

I've talked about JHS in all of my posts up until now, but never really explained what it is or how it can affect a person. Now I'm not just explaining this for the people who haven't heard of JHS,... Continue Reading →

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