Now this isn't the post I originally planned for today... I was originally going to be sharing my story. However, after a tough week last week I decided to share this instead: living with a chronic illness at university. I feel... Continue Reading →
Well we've come to the end of February again. I can't believe how quick it seems to have come around... it only seemed like Christmas 5 minutes ago. With the end of February comes Rare Disease Day and every year... Continue Reading →
You may have heard, seen or read the word "spoonie" come up before and, no doubt, wondered what on earth it means! I know I talk about spoonies and how many "spoons" I've got left etc. It's something that I have talked about... Continue Reading →
My guest piece on the lovely Dr Arlene's blog, BitterSweet: Real Talk. Thank you again!❤️
Well, this time last week, I was opening my little package and inside was this little fella! My zebra bracelet. You're probably wondering what's so special about it, right? It's just a little zebra jewel on a braided bracelet, right?... Continue Reading →
JHS then... what is it? You now know what hypermobility is, but now it's time to take it one step further. Where to start? Hmm.. Well JHS is one type of HDCT, that is, a hereditary disorder of the connective... Continue Reading →
I've talked about JHS in all of my posts up until now, but never really explained what it is or how it can affect a person. Now I'm not just explaining this for the people who haven't heard of JHS,... Continue Reading →
Living with JHS 