Wow, it's crazy. What is, I hear you ask? Well, the very fact that today marks a whole year since I pressed the publish button on my very first post. In some ways, it feels like I've been blogging for... Continue Reading →
Well we've come to the end of February again. I can't believe how quick it seems to have come around... it only seemed like Christmas 5 minutes ago. With the end of February comes Rare Disease Day and every year... Continue Reading →
You may have heard, seen or read the word "spoonie" come up before and, no doubt, wondered what on earth it means! I know I talk about spoonies and how many "spoons" I've got left etc. It's something that I have talked about... Continue Reading →
Hey everyone! If you'd love to get to know a bit more about the blogger behind Living with JHS, check out CoffeeHeartMind. I did an interview a couple of weeks ago with the sweet Chelle. Thank you again my lovely!❤️... Continue Reading →
In my previous post, I talked about the struggles and challenges of living with an invisible illness Those that can't be researched on the internet, or advised by a doctor, because, unless you live with an illness/condition yourself, you'll never know. So,... Continue Reading →
My guest piece on the lovely Dr Arlene's blog, BitterSweet: Real Talk. Thank you again!❤️
There are many types of invisible illnesses, and we can all research the different variations, the definitions, the symptoms, the relief remedies (if any). But can we research what it's like living with an invisible illness? Can we research what... Continue Reading →
Sooooo, I'M BACK. This time, I'm back for good. Thank you for being patient with me! Where have I been? I was visiting a lot of family over the Christmas period and, because I don’t get to see them very... Continue Reading →
Living with JHS 