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Living with JHS

Sharing my story to support others and raise awareness

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Lifestyle

Spoonie, or spoonie?

Confused yet? I probably would be too. Some of you may already know, especially if you suffer from a condition like JHS, what a spoonie is - that it refers to someone who has an invisible, chronic illness. Like me. Like... Continue Reading →

Lucky girl…

I saw this picture last night and it struck a chord with me because I've recently been saying how lucky I am to be surrounded by such wonderful, supportive friends and family. Without them, I wouldn't know where I'd be,... Continue Reading →

My little zebra bracelet…

Well, this time last week, I was opening my little package and inside was this little fella! My zebra bracelet. You're probably wondering what's so special about it, right? It's just a little zebra jewel on a braided bracelet, right?... Continue Reading →

What is JHS? (part 2)

JHS then... what is it? You now know what hypermobility is, but now it's time to take it one step further. Where to start? Hmm.. Well JHS is one type of HDCT, that is, a hereditary disorder of the connective... Continue Reading →

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