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Living with JHS

Sharing my story to support others and raise awareness

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Disability

My little zebra bracelet…

Well, this time last week, I was opening my little package and inside was this little fella! My zebra bracelet. You're probably wondering what's so special about it, right? It's just a little zebra jewel on a braided bracelet, right?... Continue Reading →

One of those days…

So now you know what JHS is and what it entails... here's a summary of what I've been spending today doing. Can't tell? Well it's just been one of those days... Which days? Those "JHS bad days" I talked about... Continue Reading →

Today = Rare Disease Day

So today is the last day of February (can you believe it?!), which means that today is Rare Disease Day. There are events happening all across the world, in the hope of raising awareness for those who suffer from a... Continue Reading →

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