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Living with JHS

Sharing my story to support others and raise awareness

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EDS

Some much needed relaxing…

After a couple of tough months, especially the past 3 or so weeks, I'm off to London tomorrow for a lovely, long weekend. Anyone who's close to me will know that, for the past few weeks, I've had a big,... Continue Reading →

Pills, glorious pills…

  Any of you who have seen the musical "Oliver!" will know that today's post title is a play on words of "food, glorious food". Fortunately for me though,  my tablets are not hot sausage and mustard (I don't like mustard). Despite... Continue Reading →

Physio…

I saw these photos posted on HMSA's facebook page for HMS awareness week, which was last week, and realised how uncanny they related to me. Just as I can imagine a lot of you do, I always hated going to physio so... Continue Reading →

Spoonie, or spoonie?

Confused yet? I probably would be too. Some of you may already know, especially if you suffer from a condition like JHS, what a spoonie is - that it refers to someone who has an invisible, chronic illness. Like me. Like... Continue Reading →

Lucky girl…

I saw this picture last night and it struck a chord with me because I've recently been saying how lucky I am to be surrounded by such wonderful, supportive friends and family. Without them, I wouldn't know where I'd be,... Continue Reading →

“I’ve got spaghetti for brains”

Now a lot of you will be guilty of using this phrase, maybe even more than once. Possibly because you walked into a room and forgot what you were going there to get (all of us are guilty of this) or... Continue Reading →

My little zebra bracelet…

Well, this time last week, I was opening my little package and inside was this little fella! My zebra bracelet. You're probably wondering what's so special about it, right? It's just a little zebra jewel on a braided bracelet, right?... Continue Reading →

One of those days…

So now you know what JHS is and what it entails... here's a summary of what I've been spending today doing. Can't tell? Well it's just been one of those days... Which days? Those "JHS bad days" I talked about... Continue Reading →

What is JHS? (part 2)

JHS then... what is it? You now know what hypermobility is, but now it's time to take it one step further. Where to start? Hmm.. Well JHS is one type of HDCT, that is, a hereditary disorder of the connective... Continue Reading →

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