Living with JHS

Sharing my story to support others and raise awareness


Chronic Illness

Spoonie, or spoonie?

Confused yet? I probably would be too. Some of you may already know, especially if you suffer from a condition like JHS, what a spoonie is - that it refers to someone who has an invisible, chronic illness. Like me. Like... Continue Reading →

Lucky girl…

I saw this picture last night and it struck a chord with me because I've recently been saying how lucky I am to be surrounded by such wonderful, supportive friends and family. Without them, I wouldn't know where I'd be,... Continue Reading →

“I’ve got spaghetti for brains”

Now a lot of you will be guilty of using this phrase, maybe even more than once. Possibly because you walked into a room and forgot what you were going there to get (all of us are guilty of this) or... Continue Reading →

My little zebra bracelet…

Well, this time last week, I was opening my little package and inside was this little fella! My zebra bracelet. You're probably wondering what's so special about it, right? It's just a little zebra jewel on a braided bracelet, right?... Continue Reading →

One of those days…

So now you know what JHS is and what it entails... here's a summary of what I've been spending today doing. Can't tell? Well it's just been one of those days... Which days? Those "JHS bad days" I talked about... Continue Reading →

What is JHS? (part 2)

JHS then... what is it? You now know what hypermobility is, but now it's time to take it one step further. Where to start? Hmm.. Well JHS is one type of HDCT, that is, a hereditary disorder of the connective... Continue Reading →

Today = Rare Disease Day

So today is the last day of February (can you believe it?!), which means that today is Rare Disease Day. There are events happening all across the world, in the hope of raising awareness for those who suffer from a... Continue Reading →

A bit about myself…

So before I get down into what Joint Hypermobility Syndrome actually is, I'll start with a little bit about myself. Well I'm 19 years old, soon to be 20 (oh my! No longer a teenager anymore) and I left my... Continue Reading →


So, after years of promising myself, I am finally getting around to doing just that... writing my blog about living with JHS. For those of you who don't know what that stands for, it is Joint Hypermobility Syndrome, and something... Continue Reading →

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